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Other Services and Support
for Disabled Children
Butterfly Wishes Network
The Butterfly Wishes Network is made up of professional photographers who provide their services to families with children (under 18 years) with life-shortening condtions.
The condtions may include illnesses such heart failure, diabetes, HIV/Aids, liver and kidney failure, cancer, cystic fibrosis, muscular dystrophy, and severe cerebral palsy.
The photographers donate their time to provide each family with a free session and a minimum of 10 digital images. They may be photographed at home or in a care setting.
To apply: complete the short online application form.
Disability Rights Handbook
2019/20 edition provides up-to-date information on all benefits for the disabled.
An excellent resource.
Available from Amazon.
Disabled Children – Guides for Parents
Cerebra have produced guides for parents of disabled children on a
range of issues including:
- Pain in Children
- Transition to Adulthood
- Education Health and Care Plans
- Parent Carer Rights
- Money Matters
- Education: Statement of Special
- Arrest and Detention of
- Social Care, Housing and Health
The guides are free to download. Guides are regularly updated and new guides are produced.
It also has an excellent Sleep Service, Legal Advice Department, Innovation Centre designing special equipment, book & sensory toy lending library, advice and explanations for specific conditions and directions to support for the children and their families.
Free Cakes for Kids
Free Cakes for Kids UK is a network of local groups that bake cakes for families who are unable to provide a birthday cake for their child.
The cakes are baked by passionate volunteers who enjoy making homemade themed cakes linked to the child's interest. Recent cakes have included Bob the Builder cakes, princess cakes and football cakes.
Families are able to refer themselves or they may be referred by local organisations. Applications should be made preferably 10 days before the child's birthday.
View the on-line map to find out whether there is a local group near you.
Project Linus UK
Project Linus UK is a voluntary organisation of needlewomen across the UK.
They create beautiful patchwork quilts and crocheted blankets for sick and traumatised babies, children and teenagers, hospices and sensory rooms at special schools.
To apply: contact your local branch.
Winstone's Wish provides help and support to bereaved children and young people (up to 18 years) to help them adjust to life after the death of a parent or sibling.
They work individually with the child and family or through group work. This includes time for fun, creative activites and reflection on painful issues.
Winstone's Wish also provide residential weekends for young people aged 6 to 18 years to encourage teamwork, confidence, self esteem and gives the opportunity to share stories and express feelings.
Other activities are organised to help children and families maintain contact and friendships.
Further information on advice and support for your child can be found on the following pages:
Do check ALL the pages
to find what you are looking for......
Charities and Trusts are listed alphabetically