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Grants for Neurological Disorders
ALD Life is the charity and support group for individuals and their families with Adrenoleukodystrophy(ALD) and Adrenomyeloneuropathy (AMN).
It offers financial support for specialist equipment, full time care and regular treatments.
It also provides practical support, advice and information on the condition.
Ataxia supports anyone with Ataxia through a range of services.
They manage and facilitate a number of grants schemes:
Mark Dower Trust
The Mark Dower Trust offers a small annual grant of up to £3,000. The aim is to support young people by enabling them to pursue skills, hobbies or further educational opportunities and hence allow them to maximise their independence.
The Headley Trust
Ataxia refers to the Headley Trust individuals over 16 years with Ataxia requiring support for mobility equipment, computer adaptations, communication aids, stairlifts and car adaptations.
The Florence Nightingale Aid in Sickness Trust
The Trust provides funding towards medical equipment for children and adults of all ages affected by a disability or long-term illness. This includes medical aids, specialist beds and mobility equipment. Apply initially through Ataxia who will refer to the Trust.
The Batten Disease Family Association (BDFA)
The BDFA supports families affected by Batten Disease by giving support and funding research.
In addition to family support through the Batten Disease journey it is able to provide small grants to families of children and young people living or have lived with Batten Disease.
For further details contact: email@example.com
The Cheyne Charity supports children with Cerebral Palsy and their families.
It is able to provide funding to schools, groups and individuals. For example they have recently helped fund a sensory garden in a school and day care sessions at a hospice.
The charity may be able to help individuals with Cerebral Palsy with specialist equipment.
For further information contact the Cheyne Charity direct: Mr.R.Rohan, Cheyne Charity for Children with Cerebral Palsy, Aviation House, 1-7 Sussex Road, Haywards Heath.
Telephone: 01444 450901
The Daisy Garland
The Daisy Garland helps improve the lives of children up to 12 years with Epilepsy.
It is able to provide grants for night time breathing monitors (SAT's/Epilepsy monitors) for use in the home.
The charity is also able to help with various small one off grants.
Fable (For a Better Life with Epilepsy) offer information, advice and support for potential recipients of the VNS, their families and carers.
VNS Therapy stands for Vagus Nerve Stimulation Therapy. This is a surgical procedure to help individuals suffering from severe epilepsy.
The charity is able to help fund implants for children and adults.
It also provides days out and dreams for those affected with Epilepsy. This could be the chance to experience something new or a holiday or short break.
To apply: contact the office for a nomination form.
Motor Neurone Disease Association (MND)
The MND Association provides financial support to anyone living with or affected by Motor Neurone Disease.
It is able to fund up to a maximum of £2,000 equipment, care and quality of life interventions which are either not available or delayed from statutory services.
Applications must be made by a health professional, appropriate professional or MND representative. To apply: download an application form.
If the application is successful funding will be allocated quickly within 10 working days. Priority requests can be funded within 5 days.
Muir Maxwell Trust
The Muir Maxwell Trust provides children with Epilepsy and their families practical support.
They are able to help families by providing grants for seizure alarms/epilepsy monitors to parents to enable them to sleep more confidently.
For funding and support contact the Trust on 0131 273 5256 or complete their online contact form.
MS Research and Relief Fund
The MS Research and Relief Fund is able to help individuals with MS and MS support groups.
Individual Grants can help towards the cost of aids and adaptations, equipment or services to relieve the symptoms of MS or improve quality of life.
This might include adapted cars, wheelchairs, home adaptations, powered scooters, stair lifts as well as respite care and holidays.
Applications should be made on the downloadable application form. Financial details and a supporting letter from a qualified professional are required.
Group Grants are also provided to improve services and facilities such as outings and therapies.
Multiple Sclerosis Society
The Multiple Sclerosis Society provides help and guidance on obtaining grants and finanacial aid from charitable and statutory funds.
The MS Society also runs it's own grants schemes:
- Short Breaks and Activity Fund - providing grants for people with MS and their carers to help them access a broad range of short breaks and respite care including the payment of a professional carer. Further details and a grant form can be obtained from the Grants Team at the MS National Centre in London, telephone:020 8438 0700 (for Scottish residents telephone: 0131 335 4050)
- The MS Society Grants - The MS Society branches can support individuals with financial help towards equipment, adaptions to the home and car, and top up funding for respite breaks.
Parkinson's UK - Take Control Grant
Parkinson's UK Take Control Grants are currently available for people affected by Parkinson's in 4 areas of the UK:
- Lincolnshire and Northamptonshire
- London South (including Richmond and Hounslow)
- Northern Ireland
- Yorkshire and Humber
The grant scheme will be rolled out to the rest of the Uk from January 2019.
It is open to people affected by Parkinson's or other forms of progressive parkinsonism to buy things that will improve their quality of life or to help them access activities to improve their well-being.
Grants are up to £1,500.
It is able to fund electrical items, respite care, specialist equipment or home adaptations and activities.
Regain helps people who have had a sports related spinal cord injury resulting in tetraplegia/quadriplegia.
It offers support through it "buddies" scheme for someone recently injured to speak to another tetraplegic person who has overcome difficulties.
Grants are available to help provide specialist equipment that will help achieve greater independence and improve quality of life.
Applications must be accompanied by a letter of recommendation from a suitable medical professional such as your consultant.
To apply: complete the online application form with details of your injury.
Tourettes Action is able to offer grants for individuals with Tourettes Syndrome in the UK to enable them to access activities to help improve their quality of life.
Grants are usually limited to £500 but may consider larger applications.
They are flexible in what they give grants for but are unable to fund home improvements, household items, therapies, educational activities or items that should be provided by statutory authorities.
To apply: download an application form and guidance notes.