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Alex - The Leukodystrophy Charity
Alex is the charity and support group for individuals and their families affected by one of the genetic Leukodystrophies.
It offers a package of support including information to help people learn about the condition and one to one support.
It also provides means tested financial support for specialist equipment, full time care and regular treatments.
Ataxia UK
Ataxia UK supports anyone with Ataxia through a range of services.
The charity works with other trusts and foundations who provide grants...
Mark Dower Trust
The Mark Dower Trust offers a small annual grant of up to £3,000. The aim is to support young people by enabling them to pursue skills, hobbies or further educational opportunities and hence allow them to maximise their independence.
The Barchester's Charitable Foundation
The Foundation offers support to improve independence, mobility and quality of life. It is able to help people over 65 years, adults with a physical and learning disability and adults with mental health difficulties.
The Florence Nightingale Aid in Sickness Trust
The Trust provides funding towards medical equipment for children and adults of all ages affected by a disability or long-term illness. This includes medical aids, specialist beds and mobility equipment. Apply initially through Ataxia who will refer to the Trust.
The Batten Disease Family Association (BDFA)
The BDFA supports families affected by Batten Disease by giving support and funding research.
In addition to family support through the Batten Disease journey it is able to provide small grants to families of children and young people living or have lived with Batten Disease.
For further details contact: support@bdfa-uk.org.uk
The Cheyne Charity supports children with Cerebral Palsy and their families.
It is able to provide funding to schools, groups and individuals. For example they have recently helped fund a sensory garden in a school and day care sessions at a hospice.
The charity may be able to help individuals with Cerebral Palsy with specialist equipment.
An application is favourably considered if supported by a professional, e.g. a physiotherapist or doctor.
To apply: use the online contact form.
CS Disabled Holidays provides grants to people who are severely physically disabled with neurological or neuromuscular illness.
There are currently two schemes:
Individuals can apply using the online forms. Letter from a recognised professional who is able to verify condition is required.
It is also expected that individuals who apply have not a holiday or a respite break in the last 12 months.
The Daisy Garland helps improve the lives of children up to 12 years with Epilepsy.
It is able to provide grants for night time breathing monitors (SAT's/Epilepsy monitors) for use in the home.
The charity is also able to help with various small one off grants.
Dravet Syndrome UK works to improve the lives of those affected by Dravet Syndrome through support, education and medical research.
It provides emotional, practical and financial support to families and offers 5 funding streams:
The charity also offers information and useful resources to help families and professional understand the condition.
Headway is a UK charity that works to improve life after brain injury. It provides vital support and information.
The Headway Emergency Fund offers small one-off grants to help adult brain injury survivors and their families cope with the practical implications of brain injury.
This may include
To apply: Download an application form to print or complete the online form.
The Jon Shaw Foundation supports young people living with Epilepsy.
It is able to fund safety equipment for young people (under 25 years) living permanently in the UK. This includes monitors, alarms and other equipment which would not normally be available on the NHS.
To apply: download an application form.
It also offers Memory Teddies to bereaved siblings and close friends.
Motor Neurone Disease Association (MND)
The MND Association provides financial support to anyone living with or affected by Motor Neurone Disease.
It is able to fund up to a maximum of £2,000 equipment, care and quality of life interventions which are either not available or delayed from statutory services.
Applications must be made by a health professional, appropriate professional or MND representative. To apply: download an application form.
If the application is successful funding will be allocated quickly within 10 working days. Priority requests can be funded within 5 days.
The MS Research and Relief Fund is able to help individuals with MS and MS support groups.
Individual Grants can help towards the cost of aids and adaptations, equipment or services to relieve the symptoms of MS or improve quality of life.
This might include adapted cars, wheelchairs, home adaptations, powered scooters, stair lifts as well as respite care and holidays.
Applications should be made on the downloadable application form. Financial details and a supporting letter from a qualified professional are required.
Group Grants are also provided to improve services and facilities such as outings and therapies.
Local groups may be able to offer grants. Each group will have their own application procedure.
To find your local group and the support they offer type in your postcode into the search box on this page.
Parkinson's UK are currently available for people affected by Parkinson's.
It is open to people affected by Parkinson's or other forms of progressive parkinsonism and their carers.
It funds:
The charity does not provide fund holidays, long term financial commitments or daily living costs.
Parkinsons UK is also providing grants of up to £3,000 help fund activity providers to give people with Parkinson's more opportunities to get and stay active.
The final deadline for all grant applications in 2024 is Friday 15 November at 23:59.
To apply: read the essential guide for applicant and contact your local Parkinson's UK staff member.
Parkinson's UK - Physical Activity Grants
Physical activity helps people live well with Parkinson's.
It's important to be active in ways that you find fun and enjoyable. Being active can be anything that gets you moving: being in a walking group, joining a Parkinson's boxing class, or playing Boccia with friends.
The more you can do the better. Especially if it helps you to improve your balance, strength, flexibility and cardiovascular fitness.
Parkinson's UK is delighted to offer a grants programme to help people with Parkinson's to be active.
In 2022 it is able to provide grants of up to £2,500 to support physical activity projects for people with Parkinson's all over the UK.
The application window is from: Friday April 1 to Friday 10 June 2022
For more information, or to apply, please visit:
https://www.parkinsons.org.uk/information-and-support/physical-activity-grants
Regain helps people who have had a sports related spinal cord injury resulting in tetraplegia/quadriplegia.
It offers support through it "buddies" scheme for someone recently injured to speak to another tetraplegic person who has overcome difficulties.
Grants are available to help provide specialist equipment that will help achieve greater independence and improve quality of life.
Applications must be accompanied by a letter of recommendation from a suitable medical professional such as your consultant.
To apply: complete the online application form with details of your injury.
The Tavistock Trust for Aphasia
The Tavistock Trust for Aphasia supports those with Aphasia and their families and carers.
It offers small grants that are allocated each month to improve the quality of life for those with Aphasia and their carers.
Applications are invited from people with Aphasia, carers and groups in the UK up to a maximum of £1,000.
To apply: Use the online form or download an application form. Supporting reference from a professional involved in treatment is required.
Tourettes Action is able to offer grants for individuals with Tourettes Syndrome in the UK to enable them to access activities to help improve their quality of life.
Grants are usually limited to £500 but may consider larger applications.
They are flexible in what they give grants for but are unable to fund home improvements, household items, therapies, educational activities or items that should be provided by statutory authorities.
To apply: download an application form and guidance notes.
See Also:
A-T Society (Ataxia telangiectasia)
Back Up Trust (Spinal Cord injury)
Cerebra (children 16 years or under)
Child Brain Injury Trust (for acquired brain injury)
The Danny Green Fund (for children. Posterior Fossa Syndrome (PFS) also known as Cerebellar Mutism.)
Ellie's Fund (Yorkshire)
Leuchie House (Scotland, Respite Centre for MS, MND and Parkinson's)
The Muscular Dystrophy Campaign
Roald Dahl's Marvellous Children's Charity (for children with blood or brain conditions, severe epilepsy and acquired brain injury)
Ron Scudamore Holiday Programme (for individuals with Polio or Post Polio Syndrome)
Southern Spinal Injuries Trust (South and South West England)
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