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Grants for Neurological Disorders






ALD Life

ALD Life is the charity and support group for individuals and their families with Adrenoleukodystrophy(ALD) and Adrenomyeloneuropathy (AMN).

It offers financial support for specialist equipment, full time care and regular treatments.

It also provides practical support, advice and information on the condition.

www.aldlife.org







Ataxia

Ataxia supports anyone with Ataxia through a range of services.

They offer 3 grants schemes:

The Cornberg Grant

The Cornberg Grant supports individuals with Ataxia who are unable to get help from statutory services for mobility aids and house adaptations.

The grant will help fund the purchase of equipment and adaptations such as wheelchairs, bathing and toileting facilities.

There are four funding deadlines throughout the year: 28th February, 31st May, 31st August and 30th November.

The Jerry Farr Fellowship

The Fellowship was set up in memory of Jerry Farr to allow others with Ataxia to follow Jerry's example of using travel to broaden horizons.

Ataxia UK is looking for an individual over 18 years with Ataxia to fulfill their dream by giving them the opportunity to make the journey of a lifetime.

The maximum grant awarded is £3,500 (£6,500 if a carer is required). 

The 2016 round of funding opens on 3rd February 2016 and will close on 22nd April 2016.

Mark Dower Trust

The Mark Dower Trust offers a small annual grant of up to £3,000. The aim is to support young people by enabling them to pursue skills, hobbies or further educational opportunities and hence allow them to maximise their independence.   

The next round for this grant will be in 2017

Further information on all grants can be obtained from: tthatcher@ataxia.org.uk

www.ataxia.org.uk







The Batten Disease Family Association (BDFA)

The BDFA supports families affected by Batten Disease by giving support and funding research.

In addition to family support through the Batten Disease journey it is able to provide small grants to families of children and young people living or have lived with Batten Disease.

For further details contact: support@bdfa-uk.org.uk 

www.bdfa-uk.org.uk







Cheyne Charity

The Cheyne Charity supports children with Cerebral Palsy and their families.

It is able to provide funding to schools, groups and individuals.  For example they have recently helped fund a sensory garden in a school and day care sessions at a hospice.

The charity may be able to help individuals with Cerebral Palsy with specialist equipment.

For further information contact the Cheyne Charity direct.

www.cheynecharity.org.uk







The Daisy Garland

The Daisy Garland helps improve the lives of children up to 12 years with Epilepsy.

It is able to provide grants for night time breathing monitors (SAT's/Epilepsy monitors) for use in the home.

The charity is also able to help with various small one off grants.

www.thedaisygarland.org.uk







Fable

Fable (For a Better Life with Epilepsy) offer information, advice and support for potential recipients of the VNS, their families and carers.

VNS Therapy stands for Vagus Nerve Stimulation Therapy.  This is a surgical procedure to help individuals suffering from severe epilepsy.

The charity is able to help fund implants for children and adults.

It also provides days out and dreams for those affected with Epilepsy.  This could be the chance to experience something new or a holiday or short break.

To apply:  contact the office for a nomination form.

www.fable.org.uk







Mali Jenkins Fund

The Mali Jenkins Fund provides one off grants to individuals with Parkinson's Disease living in the UK.

It can help fund equipment and home adaptations up to £1,500, respite breaks (for the carer) up to £1,000, and other items such as household appliances up to £500.

Applicants should have Parkinson's or Parkinsonism and have under £10,000 in savings (£15,000 for joint savings).  The application must be supported by a qualified professional.

To apply: download an application form.

www.parkinsons.org.uk







Motor Neurone Disease Association (MND)

The MND Association provides financial support to anyone living with or affected by Motor Neurone Disease.

It is able to fund up to a maximum of £2,000 equipment, care and quality of life interventions which are either not available or delayed from statutory services.

Applications must be made by a health professional, appropriate professional or MND representative. To apply: download an application form.

If the application is successful funding will be allocated quickly within 10 working days. Priority requests can be funded within 5 days.

www.mndassociation.org







Muir Maxwell Trust

The Muir Maxwell Trust provides children with Epilepsy and their families practical support.

They are able to help families by providing grants for seizure alarms/epilepsy monitors to parents to enable them to sleep more confidently.

For funding and support contact the Trust on 0131 273 5256 or complete their online contact form.

www.muirmaxwelltrust.com







MS Research and Relief Fund

The MS Research and Relief Fund is able to help individuals with MS and MS support groups.

Individual Grants can help towards the cost of aids and adaptations, equipment or services to relieve the symptoms of MS or improve quality of life.

This might include adapted cars, wheelchairs, home adaptations, powered scooters, stair lifts as well as respite care and holidays.

Applications should be made on the downloadable application form. Financial details and a supporting letter from a qualified professional are required.

Group Grants are also provided to improve services and facilities such as outings and therapies.

www.ms-researchandrelief.org







Multiple Sclerosis Society

The Multiple Sclerosis Society provides help and guidance on obtaining grants and finanacial aid from charitable and statutory funds.

The MS Society also runs it's own grants schemes:

  • Short Breaks and Activity Fund - providing grants for people with MS and their carers to help them access a broad range of short breaks and respite care including the payment of a professional carer. Further details and a grant form can be obtained from the Grants Team at the MS National Centre in London, telephone:020 8438 0700 (for Scottish residents telephone: 0131 335 4050)
  • The MS Society Grants - The MS Society branches can support individuals with financial help towards equipment, adaptions to the home and car, and top up funding for respite breaks. 

www.mssociety.org







Tourettes Action

Tourettes Action is able to offer grants for individuals with Tourettes Syndrome in the UK to enable them to access activities to help improve their quality of life.

Grants are usually limited to £500 but may consider larger applications.  

They are flexible in what they give grants for but are unable to fund home improvements, household items, therapies, educational activities or items that should be provided by statutory authorities.

To apply: download an application form and guidance notes.

www.tourettes-action.org.uk







See Also:


Cerebra (children 16 years or under)


Child Brain Injury Trust (for acquired brain injury)


Ellie's Fund (Yorkshire)


Epilepsy Scotland


The Muscular Dystrophy Campaign


The Nihal Armstrong Trust (children with Cerebral Palsy)


Roald Dahl's Marvellous Children's Charity  (for children with blood or brain conditions, severe epilepsy and acquired brain injury)


Ron Scudamore Holiday Programme (for individuals with Polio or Post Polio Syndrome)






















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